asnavigators

Clinician
resources

Important information to assist families living with Angelman Syndrome navigate this complex disorder.

"Your greatest ally is an observant mother. Listen to her" - Harry Angelman

asnavigators Patient resources

About Us

asnavigators can connect you with resources and clinicians experienced in treating many individuals with Angelman syndrome, providing expert advice and support to help you deliver the highest standard of care.

Because Angelman syndrome is rare and highly variable, we understand that not every clinician will have had the opportunity to treat a patient. Our team is here to provide expert guidance, resources, and connections to experienced specialists, helping you navigate the complexities of care and support your patients with confidence.

Helpful resources

Adult Comprehensive Health Assessment Program (CHAP)

The Comprehensive Health Assessment Program (CHAP) is an evidence-based tool for conducting annual health assessments for people with intellectual disability in Australia. This version is for adults, people aged 18 years and older. More information…

RArEST Project

Australia’s first-ever National Recommendations for Rare Disease Health Care (the Recommendations) are now available!The Recommendations have been endorsed by Rare Voices Australia (RVA) and 10 national colleges and bodies. They have also been officially recognised as an Accepted Clinical Resource by The Royal Australian College of General Practitioners. More information…

Australian Angelman syndrome patient organisations

asnavigators equips you to provide a high standard of local care

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Case Consultations

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Referrals

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Clincian Resources