Patient resources
Important information to help families living with Angelman Syndrome navigate this complex disorder.

"Your greatest ally is an observant mother. Listen to her" - Harry Angelman

"Your greatest ally is an observant mother. Listen to her" - Harry Angelman
Have you joined the Global Angelman Registry yet? It’s a vital step for all Angelman syndrome families. The Global Angelman Syndrome Registry is a tool for understanding developmental progress, medication and seizure management. With your consent, asnavigators can use the information you provide to help determine your needs for your clinic appointment, saving time during your visit.
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