Clinician
resources
Important information to assist families living with Angelman Syndrome navigate this complex disorder.
"Your greatest ally is an observant mother. Listen to her" - Harry Angelman
"Your greatest ally is an observant mother. Listen to her" - Harry Angelman
asnavigators can help connect you with information, resources, and clinicians who have experience working with individuals living with Angelman syndrome. Our role is to support healthcare providers by sharing relevant clinical information and facilitating links to appropriate services.
Because Angelman syndrome is rare and presentations vary widely, we understand that many clinicians may not have encountered a patient before. Our team provides general information and pathways to specialist services to assist with care planning and navigation within the health and disability systems.
The Comprehensive Health Assessment Program (CHAP) is an evidence-based tool for conducting annual health assessments for people with intellectual disability in Australia. This version is for adults, people aged 18 years and older. More information…
Australia’s first-ever National Recommendations for Rare Disease Health Care (the Recommendations) are now available!The Recommendations have been endorsed by Rare Voices Australia (RVA) and 10 national colleges and bodies. They have also been officially recognised as an Accepted Clinical Resource by The Royal Australian College of General Practitioners. More information…
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