asnavigators

Patient resources

Important information to help families living with Angelman Syndrome navigate this complex disorder.

"Your greatest ally is an observant mother. Listen to her" - Harry Angelman

asnavigators Patient resources

Learn more about Angelman syndrome

Understand the care you should expect

Connect with other Angelman families

Closed Facebook groups

Helpful Resources

Help lines
  • Poisons 131126
  • Lifeline 13 11 14
  • Salvation Army Care Line 1300 363 622
  • Beyond Blue 1300 224 636
  • Sexual Assault & Domestic Violence 1800 424 017

Join the Global Angelman Registry

Have you joined the Global Angelman Registry yet? It’s a vital step for all Angelman syndrome families. The Global Angelman Syndrome Registry is a tool for understanding developmental progress, medication and seizure management. With your consent, asnavigators can use the information you provide to help determine your needs for your clinic appointment, saving time during your visit.